We have been practicing numbers, Rayden's name, and letter recognition here and there but we received his actual makeup work this weekend. We tried to gain some normalcy by completing a few sheets to help pass the time. (Not really his choice of fun things to do).
Uncle G came and took Michael out to lunch. They brought Rayden some McDonalds to have outside for a picnic. When we made it to the Labyrinth area outside for the picnic Uncle G was sitting there to surprise us. We didn't know he stuck around to enjoy some time with Rayden. We enjoyed the sunshine and fresh air. Rayden even picked up a lizard and tried to throw it at me! Yes, I love being a "Boy Mom!"
I am concerned about the drainage in the canister today. The first time it was changed it looked bloody. The second time it looked like clear apple juice. Now it looks like milky apple juice. I hope I'm just being paranoid but the nurse noticed it as well. Since he has another wound vac change in the morning, she said there really isn't anything to do about it until then.
March 1, 2021 (Day 46 in the hospital)-5th wound vac change
Before we went down for the 5th wound vac change this morning, Rayden had a photo shoot. Chapel Hill Magazine took pictures of him getting Wonder Connection science activities from Andrew. It should be in the April edition. I can't wait to see how it turns out.
They gave Rayden Ativan before the procedure this time hoping it would calm him down so he wouldn't be so frightened. When we got down there the anesthesiologist had purchased a surprise for him over the weekend. She gave him a frog flashlight that hangs on his carabiner. He was so tickled. I was blown away that she thought enough to order him something on Amazon and have it next day shipped just so she could give it to him today. So very thoughtful.
Dr. Damitz said the wound looks much better today. She was actually worried when she saw the cloudy fluid in the canister but the wound itself didn't look anything like she was expecting. She said it had nice, red, beefy tissue all the way around the AlloDerm. She did have to debride one small area of skin but other than that, it is looking great. She was very pleased. It's so hard to tell how big the wound is from the pictures but the nurse said it was bigger than the size of a quarter and rather deep.
When Rayden finally started waking up in the recovery room he was not at all himself. He was angry and irritated. He started pulling everything off of him, and leaning so far off the bed that he almost fell off. He was crying very loudly and screaming. Nothing could soothe him. He couldn't sit up without falling over, his speech was slurred, and he was so drunk headed. This continued even when they brought him back to his room. They are constantly telling me how he needs to eat a lot of protein so I ordered him a cheeseburger. We finally got some food in him and he began to feel better. I don't think we are going to let them give him Ativan again.
I complained to the doctor last week that Rayden has missed 6 weeks of PT, OT, Speech, and school. I am working with him as much as I can, but Lord, I'm tired! He's falling behind and I just can't do it all with no real rest or a mental break. They agreed, and he had an actual Physical Therapy session this afternoon for about 30 minutes. He enjoyed it so much that he thought he was doing gymnastics again. (He used to go to Elite Gym and LOVED it.) That was the extent of my break today! As soon as she left he wanted to walk the halls to talk to people for 30 minutes, followed by his hour in the play room.
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