July 4-5, 2015 "Fourth of July"

Saturday- Happy 4th of July!!

Michael and I tried to occupy Rayden as much as possible today. We gave him a bath, played with all kinds of toys, had some tummy time, watched Mickey Mouse Clubhouse, sang songs, etc. It's very hard not to just pick him up when he's actually started reaching for us a little. Uncle G couldn't stand it and just had to pick him up for just a minute! Rayden was super duper happy!!

Rayden has started trying to sit himself up. It looks like he's doing sit ups! I think he really, really wants to get out of this bed! He grunts and pulls his head just as far toward his belly as he can.

By late afternoon Rayden's vein didn't seem to want his antibiotic any more. He started crying when the nurse began the drip but he calmed down soon so they let it continue. The Vancomyocin is very hard on the veins. By the evening his vein had closed. It wouldn't even flush. So the nurse took out his third IV.

Sunday-Michael spent the night with Rayden one more night before having to leave for work. He says he slept all night!

When the neurosurgeon came in and found that Rayden no longer had an IV he instructed the nurses to place another one. His nurse stuck him in his head!!!!! I told her that Dr. Elton probably wouldn't like it there because he was going to operate on his head, but she tried anyway. I was actually glad it blew. I could not stand the thought of another tube coming out of his head!! After that failure, she stuck his right foot. He could not feel this at all. When it failed as well I asked her to get the nurse that did it on the first try on Wednesday. She came in a few hours later. After looking everywhere with the special light she tried his hand and foot with no success! She was going to try his head again but couldn't find a vein. All of Rayden's veins are exhausted between the three IV's, blood draws and failed IV attempts. She said if Neuro wants an IV, they are going to have to come get it themselves. Later on in the afternoon, Neuro decided he didn't need any more antibiotics because all three cultures have been negative.

Alex came to play with Rayden today. He was so happy to see him.

Rayden really enjoys his Ferris Wheel toy. We have been trying to entertain him with all kinds of things but now he wants me to hold him while he sits up in the bed. (He can't sit without support yet) I know it has to be hurting him to lie down all the time.