1-Pediatrician
Dr. Chiodo says Rayden's new born screen results showed all is great. It is difficult to get an accurate weight because of his casts but he weighs around 11 lbs. which puts him in the 25th percentile for his age. She said he is gaining weight sufficiently so we can stop putting the rice and Enfamil in his breast milk. He received 4 vaccines. It broke my heart to hear him cry so I picked him up just as soon as possible. He has had a low grade temperature for three days due to the shots.
Rayden was amazing during the ultrasound. I can't believe how well he did. He just laid there half asleep sucking his pacifier. Results showed Rayden has a mild hydrocele, fluid around the testes. Dr. Ross suspects it will dissolve with time.
3-Orthopaedics
Rayden received his 6th set of casts. Dr. Narotam says he has one more for the left foot before we do the tendon clipping. He is actually going to leave the right cast on next week if it is not too tight. I can hardly wait to have him out of these casts!
4-Neurosurgeon
Dr. Elton is concerned about Rayden's head circumference continuing to increase. It is now measuring 43cm which puts him in the 95th percentile for his age! The veins in his head are more prominent also. He suspects the bulge in his neck IS a malfunction! He adjusted the shunt setting to 1.5 so it will drain more CSF off his brain. He says we may need surgery again!! I can't believe this. I don't understand how it continues to malfunction. He wants to see him again in two weeks and we will discuss our options.
Rayden had a urodynamics study on Thursday. This is a procedure that looks at how well the bladder, sphincters, and urethra are storying and releasing urine. It focusses on the bladder's ability to hold urine, empty steadily and completely, and if the bladder is having involuntary contractions that cause urine leakage. He slept through the entire test. I am so glad, because it was a terrible process. They filled his bladder with some blue dye, then watched the screen to see where the urine went. Dr. Ross says he has a good bladder and there is no backing up right now but he will have extreme difficulties with potty training. She says she doesn't suspect he has any sphincter control and tends to leak when coughing, sneezing, etc. She will repeat the test in a year and we will discuss ways to help him learn how to be dry later on. The picture was taken before they filled his bladder with the blue dye. You can see the shunt tubing in his abdomen.
No comments:
Post a Comment