Jan. 14- Rayden's head circumference is stable at 37.5cm. He continues to gain weight. Today he weighs 6 lbs. 9 oz. We got lots of good news from the doctors today. Newborn screening came back normal and CSF culture is still negative. Speech pathology came to feed Rayden breast milk mixed with rice cereal. It had to be mixed three times during the feed so Rayden got impatient and angry. They are going to do another swallow study tomorrow to see if he has improved.
I have been taking lots of pictures of Rayden to send to Michael while he's away. This is a selfie of the two of us. He remains awake and alert for an hour after his bottles. Everyone is amazed at how well he is doing. He's more alert than any other baby in our Pod and he's the youngest!
Jan. 15- Rayden's incisions from the last shunt surgery are actually scabbing over. That never happened after the first surgery. The only problem now is his stitches are starting to come out. Look closely at the bottom scar and you can see what looks like fishing line hanging from his head.
Natasha, Rayden's primary nurse, took him on a 'field trip' today to another swallow study. They are trying to see if we can take the rice cereal out of his milk. The study showed little to no reflux/aspiration. He is now allowed to drink just breast milk fortified with Enfamil but will need to use a preemie nipple. I'm fine with that. I am hoping we can eventually drop the Enfamil, but I am VERY relieved that we can stop the rice cereal. I was so concerned that it was going to make him over weight.
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