Dec. 18-I can't even begin to say how I feel right now. Dr. Elton, the neurosurgeon, just left. He says that although we are 32 weeks gestation Rayden's head size is now as big as a 42 week baby. That's bigger than full term! He is extremely concerned about his skull collapsing on his brain which is a huge problem. He stated he wanted to take Rayden as early as next week and put in a programmable shunt so he can relieve the pressure slowly. That way the skull plates would close back up slowly and hopefully not overlap or collapse. That would be a HUGE surgery. He's not sure if he will have to do the shunt surgery the day of the c-section or if he can wait until the following day. They will more than likely leave in the breathing tube after surgery as well. What really upsets us the most though is that he can't guarantee brain development. He said he knows there is brain there but he doesn't even know how much!!! He says the fluid has been compressing his brain against his skull and we will just have to see if his brain will fill back up his head or not! WHAT??!! Oh God, isn't it miracle time yet?
Dec. 19-I didn't sleep very well at all. I cried and prayed all night. I actually curled up with Michael on the sofa in here just to calm down some. Dr. Casey came in this morning and said that they are going to give me 2 more steroid shots this weekend and probably take Rayden on Monday or Tuesday. He would let me know exactly which day this afternoon. He said he has been in an email chain with Dr. Goodnight and Dr. Elton and they would make a decision today. So much for waiting until the 30th... Please pray for Rayden. I'm so afraid.
If you would like to help support Rayden's you can order a t-shirt from www.booster.com/raydensreason. We had to redesign it.
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