Rayden and I had a telemedicine visit with Dr. Marcus Cox, PA at Shriner's Children's Hospital in Greenville, SC. After reviewing his medical history and reason for making the appointment, he examined Rayden's back as best he could through the computer screen. He said there was no evidence of skin or wound breakdown at his closure/scar. He watched Rayden walk across the room and said he has a reciprocating heel toe gait with neutral foot progression angles using his twister cables. He also said he has a moderate amount of trendelenburg (sway from side to side) due to weak hip abductors. He recommended bringing Rayden into the Spina Bifida clinic for an evaluation with orthopedics and neurosurgery, particularly to get a second opinion regarding the treatment of his tethered cord. He discussed that given the logistical and insurance issues, it is unlikely that they could provide non-orthopedic procedures in Greenville. He would seek out information regarding neurosurgical options available within the Shriners system. Unfortunately, I never received a follow up call, even after I left a couple of messages and sent a few emails.
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