Welcome to Rayden's page. Here you will find a story of our sons journey with Spina Bifida. There have been many challenges and struggles through the years but it's been worth it! I have tried to keep this blog updated. It might be easier to navigate by using the side bar and looking for specific dates or posts. You can even use the search engine for something specific. I welcome comments as well.
Tuesday, December 31, 2024
Saturday, December 28, 2024
December 28, 2024 "Seizure #20"
Rayden had another seizure last night. He fell asleep on the sofa while we were watching tv. He sat straight up, holding his head, and yelled for me one time. Then he went straight into the seizure. We gave the valtoco and called EMS when he stopped breathing. He was coherent enough to TRY to follow my instructions of deep breaths but his eyes were so glazed over and he was choking on saliva. It was tough but we made it through it. The worst part is that I know I didn’t give him his medicine Christmas morning. Seems like he’s VERY dependent on his meds. We have an EEG scheduled for Thursday.
Friday, December 6, 2024
December 6-8, 2024 "Sawtooth Deer Hunt"
What a great weekend at the Sawtooth Farm Hunt. Rayden had a blast! He ate wonderful food, met fabulous people, received great prizes, spent some time with his life long SB buddy; Aaron, and even saw Santa. Rayden, Michael, and their two guides; Stacy, and Pastor Bird, went deer hunting three times this weekend. Rayden was able to harvest his first buck at the last minute, just before sunset Saturday night. They nicknamed him “Buzzer Beater!” They arrived back at camp blowing the horn. We came out to see the truck pulling a trailer with a four wheeler on it. Rayden was riding on the four wheeler with Pastor Bird beside him. They were waving like he was in a parade. Everyone was clapping and screaming that Rayden had killed his first buck. He was one happy little boy!! What a wonderful memory for him to hold onto for the rest of his life!We can’t thank everyone enough for making these lasting memories happen.
Saturday, November 16, 2024
November 16, 2024 "Bear Hunt"
What a morning in Maple Hill, NC Angola Bay Busters Bear Club. Rayden, Alex, Ed, and Brian were in the blind at 5am looking for a chance at Rayden's first black bear. There was actually a bear on the peanuts when they arrived and stayed the entire hour and twenty minutes until legal shooting light. They enjoyed watching her dine and play. Two minutes after daylight, he took the shot. It connected in the shoulder allowing the bear to run off. The club showed up in full force and put the dogs on her. Within fifteen minutes they had her bayed right off the road. One of the club members actually swam across the little creak to get over there before Rayden shot again so he could grab the dogs. Rayden rolled the track chair and was able to take another shot. This time it was a head shot and down she came!!!!! The club members were ecstatic! They tied a rope to the 150 lb bear and pulled her across the creak.
We took the bear head to Jake Rouse Taxidermy and processed the rest at home. Rayden enjoyed eating his bear and sharing it with the family.
Sunday, November 10, 2024
November 8-10, 2024 "Gobbles and Grunts Deer Hunt"
Thursday, October 10, 2024
October 10-13, 2024 "Dream Hunt in Louisiana"
What a weekend!! Brandy Garison was so thorough and planned everything wonderfully. We sure felt like celebrities when Connor Floyd met us at the airport to start filming for the episode.
Registration began at 3pm Friday where we met our cameraman and guide, Dalton. After the private interview, they took a deep dive into the backpack. It was filled to the brim with hunting essentials, a Dream Hunt t-shirt and hat, snacks, and more. Dalton showed Rayden the gun they planned to hunt with before heading down the hill for some target practice.
Rayden fell asleep in the blind but Dalton woke him up when the deer began roaming. Michael and I were not able to go out with him because there wasn't enough space with all the camera's and the crew. I suppose we will find out when the episode aires. All I know is, Rayden shot a super fat doe. After the dust settled, they picked us up to help him 'find' the doe. We took some great pictures and completed the traditional blood smear on the face. Blood smearing is best described as a social ritual that initiates newcomers to the hunting ranks. It is considered a rite of passage. Even though Rayden didn't really like it at the time, he brags about it now.


Saturday, September 21, 2024
September 21 & 28, 2024 "Deer Hunts"
September 21-Crossbow Deer Hunt
Rayden practiced a lot throughout the week preparing for the crossbow hunt. When the day finally arrived, he felt prepared. He put seven hours in the stand! He didn't see anything that morning, but the evening hunt was a little more adventurous. An absolute boss, eight point stepped out to the corn. He raised his head, spun around, and returned the way he came, not presenting a shot!!!! Rayden was super disappointed but lesson learned; "they don't get that big by being stupid."
The guys spent another entire afternoon trying to harvest a deer with no luck. Mr. Craig Richardson was his guide this time, and he sure had a wonderful set up. The stand/blind had comfy chairs, carpet, and lots of windows. Rayden was particularly talkative while hunting. Mr. Richardson told him that he needed to be like a ninja (quite and stealthy). The funny part is; Rayden said a ninja is a motorcycle (and he's just like that!). At lunch, everyone even took the time to present me with a cake while singing Happy Birthday.
Monday, September 9, 2024
September 9 & 15, 2024 " Two more seizures, #18 & 19""
Sept. 4 I had a phone conference with Dr. Mary Ann Chiodo, pediatrician, about Rayden waking up scared several times throughout the night. He's been real agitated and moody lately, and falling asleep in class as well. I was wondering if we needed to increase his ADHD/anxiety medication.
Sept. 9 Rayden had another seizure today after school. He was sitting on the sofa and started screaming, this unbelievable, agonizing scream! He was holding the right side of his head. His eyes were glassy and he was gagging like he was going to vomit. He was alert and able to talk a tiny bit but then he quickly clinched his teeth and started convulsing. I gave him the Valtoco within 2 min of onset (as soon as I could grab it and get it open). He was on his side and stopped breathing. Michael called 911 while I did sternum rub and kept telling him I was here and he was ok. His lips turned blue, but he came out of it pretty quickly. The paramedics checked him out and he was ok. This is the first one since Nov. 4.Sept. 11 Rayden got written up in school today for hitting a little girl two times on her head with an ipad! He was trying to talk to her, and got upset when she didn't respond. This is definitely not normal behavior for him. Luckily, the little girl wasn't hurt. She didn't cry or even tell the teacher. The teacher just happened to see it herself. I made him write her an apology letter, verbally apologize to her and his teacher, and took his ipad away for an entire week. He seemed to understand why he was being punished and accepted it.
I began researching the symptoms he was having before the seizure. I found that a prodrome (beginning phases of a seizure) is a feeling people have prior to experiencing a seizure. This may happen weeks or days before a seizure. It can include unusual sensations or emotions, a sense of extreme fatigue, difficulty sleeping, mood changes, anxiety, light-headedness, difficulty focusing, and behavior changes. That explains everything!!
Sept. 15 Rayden had another seizure tonight. We were finishing up a movie before bed, he was laying on the couch, and had fallen asleep. I heard a noise and looked over to she him convulsing. I yelled his name, but, of course, no answer. He had foam (liquid) coming out of his mouth and nose! I gave the Valtoco and Alex called 911. His seizure watch did not work! Luckily we were sitting right there and saw it. What if he was already in bed and I didn't know? This terrifies me. He slept with us the remainder of the week until his neurologist decided to increase his medication.
September 7, 2024 "KFO Dove Hunt and G&G Banquet"
We left the dove hunt after lunch to make it to the Gobbles & Grunts Annual Banquet. I gave a big speech about how wonderful the organization is, what they mean to us, and how much they do for children. After enjoying a large meal, the auction and raffle began. It is fun to see how much each item will end up going for. Rayden won a handgun, ghillie suit, gloves, and game camera in the raffle. When the crowd realized the winning gun ticket belonged to Rayden, they all started clapping. It was so heartwarming.
Wednesday, July 17, 2024
July 18, 2024 "Miracle League"
Tuesday, July 16, 2024
July 13, 2024 "Summer Happenings"
June 8 Rayden has been asking to help Daddy and Alex with the yard work for a while now. This kid has always loved to help work! I'm sure it will subside one day, but for now, we encourage his determination. We don't feel comfortable with him using the lawn mower or weed eater yet, so we bought him a light weight leaf blower. He could hardly wait to get out there and blow the grass clippings off the driveway. He 'had' to have safety glasses, and ear buds like Daddy and Alex too!