At 6:35am we were awakened by Rayden sitting straight up in his bed, reaching into the distance, sporadicly coughing, and repeatedly saying "ouch". Alex got to him first, followed by Michael and myself. He was able to reach for each of us and respond a tiny bit with shaking his head, but not speaking. We saw the daze in his eyes as they moved back and forth. I began videoing while Michael got the emergency medication. When he began this weird burping/breath and drool we laid him down on his side and kept talking to him. He began shivering all over, twitching, and taking weird breaths. His eyes kept going back and forth and he continued the funny swallowing like burping. After 3 minutes I administered the Valtoco. He clinched his lips and stopped breathing. Michael called 911 as Alex kept rubbing his chest. For 2 whole minutes I was yelling "breathe!" while Alex and I both continued sternum rubs. We even tried to give him a breath, but his teeth were clinched and Alex couldn't open his mouth. He just gave him a breath over his nose and mouth. Finally, he coughed and began taking shallow breaths. The paramedics arrived and did a complete workup. BP 112/60, HR 115, RR 16, BGL 109, Temp. 97.6. He was answering their questions without slurring his words. We elected to keep him at home instead of transporting him to the hospital. While Rayden slept on the couch, I sent emails to his Neurosurgeon (Dr. Scott Elton) and Neurologist (Dr. Carolyn Zook-Lewis) at UNC. Dr. Elton's Nurse Practitioner advised us to go to UNC ER for a complete workup if we were still concerned. Of course, he could always be having another shunt failure, but it could just be another seizure (as if that's not bad enough)! Who knows? I sure wish Rayden's health care wasn't such a guessing game. Dr. Zook-Lewis decided to increase his seizure medication from 8ml to 10ml. Rayden slept until 12:30. When he woke, he was hungry and back to himself. Praising God for all His blessings.
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