July 12, 2016 "Out of casts!"

Rayden was all smiles as we started our trip to UNC today. We have been counting down the past 12 days until Rayden could get these casts off. No matter what the doctor said, Michael and I decided that Rayden deserved a break from casts and they were coming off TODAY!! Of course we were praying that her last ditch effort actually worked and his left foot was in the correct position this time.

In this video clip you can see Rayden's casts being removed. He is always so brave. Most children scream and cry during this procedure. You can see the fear in Rayden's face but he is not screaming or crying. He is the toughest little fellow I know.

Dr. Cuomo said his feet look much better. She is still worried about the left foot though. She wants us to do lots of stretching to dorsiflex that foot. IF we can keep it this way then we will not have to do another surgery although she's afraid that left foot will give us problems.

Rayden got his new superman AFO's for the daytime. He also got little boots with a bar in between to wear at night. Everything was going smoothly. We were all so happy to be free from casts! The excitement dwindled within 30 minutes of being home though. Rayden started crawling on the floor. After being in casts for 11 weeks straight, his legs were very weak. I picked him up only to notice that his left foot had slid up in the AFO. I knew this was going to cause problems. After re-adjusting it numerous times I decided to send a picture to Dr. Cuomo hoping she would have some suggestions.

 

 

After dinner we decided to put Rayden in his little pool. He hadn't been able to even take a bath in 11 weeks, I knew he would enjoy this! It didn't take too long for him to start splashing away! 

I thought after this long, eventful day that he would sleep well, but I was wrong!! He absolutely hated these boots with the bar. He woke up every 30 minutes ALL NIGHT LONG!!!!!! He can't sleep! Now what? I pray that he will soon get used to them and that Dr. Cuomo has a suggestion to stop his foot from sliding in his AFO's.