No family plans to have a child with spina bifida – the diagnosis and journey is one that no one expects or wishes for. As devastating as the news seems when families first learn of the diagnosis – once a child is born with spina bifida our children are surrounded by so much love. Families often recognize that their child is a gift that they were blessed with for very special reasons. They continue to remind us just how amazingly special this journey can be.
Our little friend Rayden was born late last year and is now 8 months old. After undergoing fetal surgery he arrived at 33 weeks due to his hydrocephalus progressing significantly in utero. He's underwent a few shunt surgeries and challenges in his first year but he continues to smile and bring his family so much joy. photography by Tammy Bunn Treasured Moments Photography #spinabifida #redefiningspinabifida #hydrocephalus |
Our friend Rayden was born with spina bifida and hydrocephalus about 8 months ago. Can you sense he's just as curious as other babies his age? Never forget that babies born with spina bifida are babies first.
All to often parents may worry about the challenges of spina bifida when their babies are young – what advice do you have for other parents raising a baby with spina bifida?
photography by Tammy Bunn
#spinabifida #redefiningspinabifida
Many of our families consider our children born with spina bifida to be our "heroes" and it's not uncommon to consider them a superhero. They surely do show their strength from a very young age and overcome so many challenges beginning as a baby that many grown adults don't face in their entire lifetime.
If you find yourself admiring your own little superhero born with spina bifida let us know – we'd love to see a picture and hear about how they've overcome the challenges that may occur with spina bifida.
Rayden's family has shared his story on their blog since before he was born – we think you'll be touched to see it: http://raydensreason.blogspot.com/
Do you have a blog or facebook page to share your experiences with spina bifida in your or your child's life? If so post a link – we'd love to see them.
Do you have a blog or facebook page to share your experiences with spina bifida in your or your child's life? If so post a link – we'd love to see them.
No comments:
Post a Comment