March 27, 2015 "Casting #9-10"

What a week!! There was something almost every day!

Monday-Pediatrician
Rayden has not had any reflux issues to speak of since they added the Prilosec. He is such a happier baby now. He weighs 12 lbs. 1 oz with the casts. He is growing so fast. Rayden has been eating all 4 oz. of his milk every four hours and seems to want more. Dr. Chiodo says that we don't need to move him up yet because we just got his reflux under control and he is still really like a 1 mo. old due to his prematurity. She doesn't want to push him too fast.
Tuesday-Cast #9
Dr. Narotam seemed very upset about Rayden's head again. He has never seen it sunken in like that. Last week, when Rayden was in the hospital, Dr. Elton adjusted his shunt to drain more.  Dr. Narotam was so concerned that he took pictures on his cell phone and sent them to Dr. Elton. He is such a caring, concerned doctor that treats more than Rayden's feet. He sees Rayden as a 'whole child' not just a foot patient.
Rayden seems to like having the cast removed! I certainly don't blame him. Dr. Narotam seems to think there may be more mobility in the left foot. We are going to pray hard that he does not have to have additional surgery.
Thursday-Met with our case manager
Rayden's case manager for the Infant-Toddler program is so nice. She is getting the ball rolling for him to receive therapy at home. He should be receiving physical therapy, occupational therapy, and play therapy soom. There is so much paper work! I decided to compile it in a notebook. I've got to get this organized somehow.
Friday-Cast #10
Our friend, Angie Parker, took us to Chapel Hill today. I'm so thankful that we have so many wonderful people in our life willing to help us out.
Dr. Narotam is still upset that Rayden's head is sunken in. I'm not sure what happened but when I came home after this appointment there was a message on our home phone stating that Dr. Elton wanted to see Rayden on Tuesday. Pretty sure Dr. Narotam had something to do with that...