Rayden was super excited to pick out a pumpkin. He had a hard time choosing so we ended up getting four! He wanted to carve one right away. We finally carved our Jack-O-Lantern on Oct. 19 and the pure amazement in his eyes makes life worth living. Rayden gets so much enjoyment out of every thing he does. We cherish all these 'firsts' with him.
We believe Rayden had his second seizure today. It wasn't as clear cut as his first episode which is why I say "we believe". I'm also beyond THRILLED that this wasn't at all like his first seizure/s.
Rayden was in the library with Mr. Graham when he noticed that Rayden seemed extra sleepy. He put his head down on the table and Mr. Graham got worried. He asked Mrs. Charlotte, who was also in the library, if he seemed extra tired when she was working with him earlier. She didn't think so. He asked Mrs. Raines, who happened to be walking by, the same question. She also said no, and came to assess Rayden. She came in my classroom shortly after and asked me to go check on Rayden because his eyes seemed glassy and he was extremely sleepy. When I got to the library Rayden was full blown asleep with his head on the table. I tried to wake him and he began to moan and groan this weird howl. When he looked at me his eyes were glassy and red. When I tried to stand him up to come sit with me he fell to the floor with no strength at all. He curled up on the floor moaning. I agreed something was wrong, but since he didn't seem to be in a seizure like before I didn't think I needed to give him the rescue medicine. I honestly didn't know what to do. This, of course, didn't make Mr. Graham feel any better! I was suppose to KNOW what to do. I asked him if he felt comfortable with Rayden laying there on the bean bag until I took my class to PE. He agreed but before I could get my class lined up Mrs. Charlotte came rushing in and said "go now!" I ran back to find Rayden sitting in Mrs. Raines' lap holding his forehead screaming "my head!" I knew then that I needed to just take him home and call the doctor. She helped me gather my things and I carried Rayden down the hall. He was screaming and moaning so loudly that teachers just closed their doors as we passed by. Rayden was asleep in the van before I got out of the parking lot. By the time Michael got home I had already talked to Dr. Mary Ann Chiodo. She believed he had another seizure but wanted me to call his neurologist to see if she may want to up his medication. I couldn't get in touch with his neurologist so I called the hospital and paged the Pediatric Neurologist on call. When she called me back we discussed the events of today as well as his history of SB and his first seizure episode. She asked me to wake Rayden up so she could assess him over the phone. As soon as Rayden sat up he began to scream "My head!" holding his forehead again. Then he would lie back down. I offered him some cake and he seemed to want it. He got off the sofa and walked to the table but as soon as he got there he grabbed his head and said "I don't want it." and went back to lie down. The doctor then spoke with her attending and they agreed we needed to take Rayden to Betsy Johnson to get a CT scan to rule out shunt malfunction. After about thirty minutes of discussing this, Rayden sat up as if nothing was wrong and asked Daddy if he could go outside. Apparently he had slept it off. A couple days later, his neurologist called me back. She determined that the medication they had him on must be working or the episode would have been worse. She didn't want to up his dosage just yet. She wanted to give it more time to get deep into his system.
