3-5-19 Rayden got his glasses. He actually LOVES them. He wears them all day. I am amazed at how easy it was for him to adjust to them. We have always called him our 'superman' and now, with the glasses, he actually resembles Clark Kent.
3-14-19 First BIG, LONG walk outside after all his major surgeries. We are somewhat concerned with his left leg turning inward. I sent this video to Dr. Vergun, his surgeon. She seems to think that his left leg is internally rotated about 80% of the time and she was not pleased with that after all she had done to correct it. She is recommending a KAFO, a custom de-rotation strap, or a unilateral twister cable for the left leg only. I am just gonna pray that all he needs is more time to build up his strength.
3-30-19 Our orthodist, Bob, stated that he feels as if Rayden just needs more time to build his muscle strength. He doesn't want to put him back in twister cables right now because that may mess up his hip surgery. He doesn't want to put him in a KAFO because that would hinder his knee from bending. He says let's give it some time. After another month if he is still turning inward he may recommend a de-rotation strap.
4-8-19 Rayden gets aquatic therapy sessions twice a week. The amount of muscle mass he is building is incredible. He has such wonderful therapists (Mrs. Jen and Mr. Josh) and he has even befriended an older lady (Mrs. Bobbie) who just enjoys helping/playing with Rayden. He truly enjoys his work outs. He doesn't even realize he is working.
4-11-19 Rayden is now walking full time everywhere! He is using his walker at school and outside, but taking independent steps inside the house to get from place to place. Yes, he is still turning his feet in a little and drags them when he gets tired, but he is doing so much better. We just continue to remind him by saying "pick up your feet" or "toes to the front". He is getting stronger every single day.
3-30-19 Our orthodist, Bob, stated that he feels as if Rayden just needs more time to build his muscle strength. He doesn't want to put him back in twister cables right now because that may mess up his hip surgery. He doesn't want to put him in a KAFO because that would hinder his knee from bending. He says let's give it some time. After another month if he is still turning inward he may recommend a de-rotation strap.
4-11-19 Rayden is now walking full time everywhere! He is using his walker at school and outside, but taking independent steps inside the house to get from place to place. Yes, he is still turning his feet in a little and drags them when he gets tired, but he is doing so much better. We just continue to remind him by saying "pick up your feet" or "toes to the front". He is getting stronger every single day.
