March 19, 2018 "First Day of Preschool"

We finally got Rayden into the EC Preschool program. He will be attending CES four days a week where he can receive physical therapy and occupational therapy during the school day. This is one excited little fellow! He finally gets to use his backpack and lunchbox he got for Christmas. We even found him some light up shoes that he absolutely LOVES! (side note: We have always had to special order his shoes to fit over his AFO's. These are a real find!!)

      

Rayden loves walking up and down the halls with his walker like a big boy! He spreads pure sunshine to everyone he meets. It amazes me how much empathy, compassion, and acceptance he is TEACHING the other children just by being there. 

We are so thankful to his awesome teachers Mrs. Rhonnie Smith and Mrs. Melanie Bastin. 

March 9, 2018 "Hip Surgery Consult #3"

Well, amazingly Rayden's hips have not changed in the last six months! Dr. Cuomo said they might actually be a little bit better. Although his left hip remains 75% OUT of socket and the right remains 25% OUT of socket, she decided to wait on the hip surgery a little while longer.

Rayden's right foot is beginning to turn in really badly. It is fighting the bracing so bad that when we remove his cables at night his ankle is so fire red. Dr. Cuomo suggested doing a tendon transfer surgery to turn the foot more outward although it would only be a partial correction. To get a FULL correction she would need to move the ankle bone itself. After viewing his foot x-ray's she decided that his bones just aren't big enough right now. Therefore we made the decision to wait another year giving him time to grow. Then maybe combine the tendon transfer, ankle de-rotation and hip surgery all in one.